[hailey62]

My newly adopted dog had a fever,gagging and a little dehydrated after her incision got infected. The vet said she could have distemper we will know in about two weeks, if she shows neurological symptoms. She has. She struggles to stand and stumbles when walks, but runs after a ball just fine. Her head bobs when laying down and her back leg has a bad jerk to it when she sleeps. Could this be something else? Some days are better than others. She is a great pyrenees and is about 18 months old. She is starting to but on weight, up to 70 pounds now. Never had a runny nose, diarreha, eye discharge, cough. And are they always contagious while alive once they have it? My vet says they are.
Tells me I should put her to sleep, I see her will and spirit to be here and want to help her.

[sublimnl]

to be honest, yes, it does sound like distemper. We just had to put down our little maltipoo puppy Buddy on Monday afternoon. We had only had him 5 weeks and he was just 3 months old. :( I feel so cheated for him and the life that he should have had.

Buddy showed those same neuro symptoms that you mention...he had constant muscle spasms behind his ears and jaws that caused his entire head to bob. He then started losing control of his right front leg and started walking in circles a lot. Before we knew it it was too late...I had never even heard of distemper until we took him to the emergency clinic on Sunday. Why our vet never caught it I will never understand. In the 5 weeks we had little Buddy we took him to the vet for various problems (all distemper symptoms) about 6 or 7 times. Needless to say, we are getting a new vet.

We called all around and went and saw the best neurology person in Houston on Monday and brought all the info posted here about NDV-CSF taps with us. Everyone we talked to dismissed it as internet legend without much substance behind it, which is how I started to feel as well the more I researched it. It just started to seem more and more like false hope...all the same dogs being saved, not enough unique cases to say this really DID work for all these different people....its sad.

I hope you find peace with whatever decision you come to. In our case we just could not bear to watch little buddy continue to deteriorate the way he was....it was too heartbreaking to watch it happen :( We will never forget him or the joy that he brought into our hearts and home.

[Giftbearer]

Hi Hailey62,

My dog, Carmella has been saved with NDV. Has your vet done either antibody titre tests from various smears or a Brush Border smear (the most reliable test for the disease)? This is real, but you will have to really advocate on behalf of your dog. Please don't give up (whatever some vets may tell you).

My dog, Carmella was suspected of having the disease for at least 20 days before she received even the body portion of the treatment, and then it took about 2 1/2 more months for me to find a vet to do the neuro part of the treatment, and it did stop any further disease-progression. She is left with some jerking which may or may not resolve (we aren't sure yet and there are not enough treated cases yet to have that kind of data. She's the first here in the US to have both parts of the treatment).

Dr. Sears (the originator of the treatment) has recently started his own website and has updated the process slightly from previous versions. You can print out the instructions (found under the section "For Vets") and bring or fax them to your vet.
http://www.treatment4distemper.com/

Daveyo's site is at:
http://www.caninedistemperproboards60.com/index.cgi

And here's another new site on Facebook just recently started by Ed Bond to organize people with Distemper dogs:
[moderator note: website address has been removed]

I have a blog documenting my dog's struggle with Distemper and success with NDV:
[moderator note: website address has been removed]

I'm working on linking all these sites so that people looking for help can easily get in contact with all the help they can get as quickly as possible.

I hope you are able to get your vet on board with this. If you run into any problems let us know.

Sincerely,

Pippit

[Giftbearer]

Hi Sublmnl,

I am so sorry to hear about your loss. I responded on the other thread as soon as I saw your note and didn't realize your dog had already been put to sleep.

This community of people and dogs with NDV success stories is growing, but up until now people have been scattered around and some of us are now working to make things more unified so that people with newly diagnosed dogs can get help alot faster.

I went through the same thing with my dog as many others have in searching for a vet, and Carmella was treated just in time. It made me really outraged that some vets would rather sit there and let a dog die of medical neglect or directly kill the dog rather than to try this option. You are right to fire that vet who left you up a creek and left your dog to suffer. As much as I realize what these vets face in the way of possible ostracism from their peers, I don't excuse it. The benefit of using NDV on a dog with such a life-threatening disease is worth the risk of doing something that seems "experimental". These vets have no better ideas, so they really should do what you ask.

It took about 2 1/2 months for me to find a vet to do the CSF procedure on Carmella after her Distemper went neuro, but hanging on paid off. She should now live a natural life-span with no further problems from Distemper. She was left with some jerking but the NDV stopped any further disease-progression, and she is a happy dog today. She has more than doubled in weight, and (aside from some mange that is being treated and going away) is very healthy and robust. The jerking does not make her suffer and she gets around just fine, has learned to ignore it and sleep through it, etc.

In case you didn't see these links on the other thread, please keep them in case you should ever need them again. You may want to join Ed Bond's Facebook group anyway because that group is involved in trying to change things so that no more dogs have to die from this disease or from a vet's unwillingness to act.

Dr. Sears (the originator of the treatment) has recently started his own website and has updated the process slightly from previous versions. You can print out the instructions (found under the section "For Vets") and bring or fax them to your vet.
http://www.treatment4distemper.com/

Daveyo's site is at:
http://www.caninedistemperproboards60.com/index.cgi

And here's another new site on Facebook just recently started by Ed Bond to organize people with Distemper dogs:
[moderator note: website address has been removed]

I have a blog documenting my dog's struggle with Distemper and success with NDV:
[moderator note: website address has been removed]

I'm working on linking all these sites so that people looking for help can easily get in contact with all the help they can get as quickly as possible.

Sincerely,

Pippit

[Daveyo]

Hi I am Daveyo

I am one of the experts on Distemper, and the original CSF tap discoverer, while Dr. Sears is the body discoverer, along with his discovery of the making of Serum X as it is called. I have three genuine dogs who previously had full acute Canine Distemper, and two of the three had full ODE coming from this disease. I did the body treatment and then did the CSF tap treatment, which was purely experimental and it worked like a charm. The disease was stopped in the Cerebral region and my two dogs who had the full blown ODE survived and is doing just fine now. One had full paralysis, and the other had seizures. This all took place in November of 2007. I also assisted Giftbearer known as PIP as well saving her dog.

As of the researchers who say Dr. Sears and I use voodoo tactics, well here is some stats for you. Dogs saved from the disease body wise over 700 genuine cases, and dogs saved from the disease neuro wise 6 since it has started. The reason this is low is finding a VET who is qualified to do a CSF tap (cerebral Spinal tap) in the cerebral cranial cavity at the foramen magnum location. It is now authentic that this disease is fully curable and can be wiped out if given this genuine medical protocol. None of this is a herbal remedy or homeopathic remedy. This is pure medical science.

Dr. Sears and I also believe we have discovered the cure for MS as well and I am working in that area too to make this become real as it gets curing humans from this disease.

Keep your heads up and tell those who told you we are internet legends, which is nice by the way being a legend and part of the wild wild west) to prove to us otherwise because we can prove to them without a doubt as we have the genuine evidence to back it all up. By the way the internet is not bad as we try to help others save their animals, whereas those researchers want MONEY THAT ALMIGHTY DOLLAR before they will take a peek at our discovery etc., and they would rather give up than move forward to newer and better treatments that is field proven and tested and safe. Go figure. Therefore they claim we are voodoo people and we laugh at them and tell them we are genuine and true and authentic as can be, and if they wish they can call us as one of the gods so to speak. Whatever, and the thing is, they are so sarcastic and snotty, and they can stay in Bio 101 for as long as they want before going to Bio 102!!!!!

You just got a taste of what Dr. Sears and I have gone thru coming from those so called Duh??? smarts. All they do is work in vitro and vivo labs playing with the scopes etc, oblivious to the real field discoveries happening around them.

They control the medical journals by the way.

Daveyo

[Giftbearer]

Hailyey62,

Let us know if you still need help. I see that some of the links above have been removed, but I'm checking periodically to see how things are going and so is Daveyo.

Sincerely,

Pippit

[hailey62]

I've taken her to several vets. No one will do anything. The say she is in the corea stage and has beaten the disease except for the shaking part. She will never get better and that she can live like this for a long time. She has grown and is putting on weight up to 75 pounds now, she seems to have more clarity to her mind and she is getting a great personality. I don't know what else to do. We've been doing this for 3 months now. No test of any kind or blood work. She seems to be feeling better, except for the shaking when walking

[Daveyo]

Hi I am Daveyo

Just read your note here.

Hmm, really, the VETS tell you this as you wrote.

First, the disease is not beaten at all, and as a matter of fact it is still there and continuing to do more damage as time goes on.

Full blown ODE will occur between 2 weeks to 8 years if not treated with NDV. Once the full blown ODE begins, it is too late to save the dog because the damage is incredible caused by that virus and it is a guaranteed death sentence.

Secondly if the dog is having Myoclonus or Ataxia and if it is associated with Distemper this also is a death sentence.

Everything points to the neurological aspects that your dog has now symptom wise.

I do suggest you get that bladder smear test done to confirm if your dog has this disease. Distemper will never go away if present and can go away either with Serum X or the NDV, both in the body and in the CNS.

Word of caution> If you give your dog a vaccine shot again, having Distemper and Parvo together, do expect the dog to react negatively and it can exacerbate its current condition. What this means you will basically accellerate the disease much faster than you think. Never ever vaccinate a sick dog at any time.

Most VETS cannot recognize Distemper and if given they still misdiagnose the symptoms. Why, due to lack of training and enough actual physical examinations within their practice.

However the rest is up to you

Daveyo

[hailey62]

anyone know of any vets in dallas, tx that do this. I thought i found one in denton and he is the one that said he could'nt do anything. She's in corea and looks healthy and gaining weight not sick at all. So she's not contagious and can go on for years or till it hits her brain. a rescue group told me about him. was disappointed in his visit because they said he does experimental with distemper. I'm confused. anyone has yet to do any test on her.

[Giftbearer]

Hi Hailey,

Bear with us and we'll both try to help you get this dog treated. I think I know of a vet in the Houston area. The dog who was treated just after Carmella was a Boston Terrier in Texas. I promised the owner I would not post the vet's name on any of the forums because this vet is still a little worried about his colleagues poo-pooing him, but he has agreed to treat other dogs. Can you give me your e-mail address? I have the name of the clinic and the vet's name I can give you. If you'd like you can contact me on the private message system on Facebook. Search for Pippit Carlington and it should take you to my profile.

This virus can go into stealth mode. What Daveyo says is correct; it doesn't just go away by itself, especially once it hits the CNS. If your dog is having chorea/myoclonus then it has hit the brain. Myoclonus is due to white matter damage in the beginning stages of demyelination. Left untreated it would just be a matter of time before that progressed to seizures or paralysis. For some dogs it is slow-progressing and for some it can speed up unexpectedly after a period of what looks like remission or a plateau. Many vets turn their backs on it if the dog seems otherwise healthy, but that is a mistake because it's not usually the body symptoms a dog dies of, but instead neuro symptoms. My vet almost made that mistake but my instincts told me that if she had neuro symptoms then it had to have crossed the blood-brain barrier. I pushed to have her treated in the CNS, knowing that merely treating the body would not get rid of it in the brain (since NDV cannot cross the blood-brain barrier the way the Distemper virus can). It turns out I was right because just when my vet was about to assume the Distemper was gone and "past" she started going downhill like gangbusters. I was lucky to find somebody to do the CSF procedure on her just in time or she would have ended up profoundly disabled.

It's a good thing you're in Texas because there are very few vets even internationally who do this. I hope we can hook you up soon with this guy.

Sincerely,

Pippit